Please give me a thumbs up for my patient… | Facebook

Please give me a thumbs up for my patient advocacy 2020 hear my voice program and learn a lot about living with metastatic breast cancer, too at Lbbc.org
— Read on m.facebook.com/story.php

Living Beyond Breast Cancer – What’s in it for you?

www.lbbc.org/sites/default/files/LBBC003_Org_Bro_8x8_Optimized.pdf

Here’s a PDF brochure of the services that LBBC.org provides – you can find EVIDENCE-based, expert vetted information so you don’t have to go searching all over the web or wonder what Google searches will turn up for you today. If you’re looking for clinical trials, an ear to listen, advice you can use now, including difficult to discuss topics like sexuality and breast cancer, and much more. LBBC tends to focus on us with metastatic breast cancer and those diagnosed at a young age – however, the information is for anyone diagnosed with breast cancer at any stage and any age. I am happy to be a part of this organization and I hope you’ll find the same caring support and valuable data that I’ve come to rely on, year after year.

I’m also pleased to say that 86% of the funds raised by and for LBBC go directly to their programs. That’s huge. Not many organizations can run that close to the razor’s edge financially and deliver the quality of services. And you won’t find a bunch of pink washed rah rah crap either, there’s real stories by real people and their voices are like yours from all walks of life — all races, stages, socioeconomic groups, and son on. No one is left out.

Yep, I’m slightly biased, but the bias comes from experience and having been all over the web looking for what LBBC provides.

I was well enough to attend the conference in Philadelphia this year and was so very much looking forward to meeting some of the women who I call my community of support, and only know virtually through our blogs and primarily through twitter – but alas, COVID, you suck, and took my first opportunity in five years since diagnosis and flushed the in-person ever important hugs and talks away for a while. But LBBC put together an amazing virtual conference and you can watch and listen to the program on their site, at LBBC.org. And I hope there’s next year, too.

For a good time and a good amount of information from people you probably know – patients – that voice that rarely gets heard at conferences – you’ll find something useful. I can bet my life on it and my life is extraordinarily valuable the longer I live with MBC.

Hey, enough yakking! I’ll let you read the brochure at the top of the post and follow the links included.

Hugs and love.

Ilene

2020 Patient Advocate in Training for Living Beyond Breast Cancer’s Hear My Voice program

(So proud!)

Resources for coping with COVID-19 | Living Beyond Breast Cancer

COVID-19, also called the coronavirus, has caused stress and uncertainty for people around the world. Many people in our communities are worried about the risks to their health because of underlying conditions, such as a weakened immune system as a side effect of breast cancer treatments. Some are also wondering how to cope with weeks in the home avoiding human contact or going out for necessary appointments, such as treatment.
— Read on www.lbbc.org/news-opinion/resources-coping-covid-19