Op-Ed: Regarding Cancer and Making Personal Connections

I’ve received so many amazing letters from people who read my blog or found me through another online channel like my Etsy shop, YeuxDeux Vintage, or on Instagram or Twitter or Facebook. They read about my diagnosis and my current life and find common ground, and I’m honored to communicate with people who were touched enough by my life to personally reach out. I appreciate their candor and I am especially humbled by the emotional outpourings of some of the communications I receive. Unnecessarily, their email begins with an apology for a “stranger” so openly sharing their experiences with me. But are we really strangers?… Read More Op-Ed: Regarding Cancer and Making Personal Connections

Peace, Peace: our universe of caregivers

Traversing my inner space wearing the lens of metastatic disease, my inner eye wanders into dark places at times. The glasses have me reading invisibilities into ideas that have no real importance. Ideas such as what my life’s purpose what could I possibly serve the world when at the moment I was diagnosed with #metastatic breast cancer three years ago, my needs far outweigh my ability to give. Many days my questions return only an inner sigh of response. My contributions and defining myself and my roles becomes so foggy, so unclear to me.… Read More Peace, Peace: our universe of caregivers

My Cancer Ate My Patience

My patience left my body and vocabulary not so long ago. It buried itself in our unorganized two car garage near the washer and dryer. It’s adverb “patiently” waiting and hiding from other eyes under some mildewed, smelly step kid laundry I refuse to wash after two years. … Read More My Cancer Ate My Patience

Never, never, never give up.*

Churchill knew that bravery comes not only from a wellspring inside, but from the community with whom we share a common connection. In his case the whole of Britain, in my case a small subset of the blogosphere. … Read More Never, never, never give up.*

#Chemotherapy and The #Customer Experience: #CVS, #Pfizer, and the danger of #outsourcing without educating agents

Should FEDEX and UPS have required a signiture as instructed by my agent the special victims unit of CVS Carremark located in India? My chemo came in cardboard boxes including VOLUMOUS amounts of Phizer literature. I used their web site irrespectively, even if the loads of junk mail in both boxes were important they went unread, causing more environmental ugliness that helped my breast cancer to spread in the first place.… Read More #Chemotherapy and The #Customer Experience: #CVS, #Pfizer, and the danger of #outsourcing without educating agents

Cantcer

I can’t sir. I am not prone tonight to eat heaving and Sounding out sloppy syllabic English. Sisyphus gave blood I heard yesterday Helping out our cause at the five and dime. When outnumbered run faster, he remarked Wiping his brow and tossing aside a bead from his neck. Colors streaking and bleeding while Ten… Read More Cantcer

Scientific Memorandum

  My darkest secrets erased in chemical warfare – Silently, quickly digging out memories hidden in the sand. Diving in and floating farther away then lifting my body Out of pools, my limbs give out to lonely laps, feet Press and push against black markers, right I left Methodically crumbs in lines, then I dive… Read More Scientific Memorandum

The Oncological Menu at the end of the Metastatic Universe

It just dawned on me as I was driving home, for expertise and advice we choose those people with whom who we agree, and more importantly, who agree with our way of thinking to be around us. No matter the circumstance: hiring staff; new friends; the closer of our family members; electing the president; even professional… Read More The Oncological Menu at the end of the Metastatic Universe

My Funny Port-a-cath

Today is my least favorite day of the month. It’s subcutaneous injection day  at the chemo infusion center. If you look at the photos of my face and upper chest, the big bandage is over my “port-a-cath,” which is used for my blood draw,  sometimes. Mainly this is an expensive tap into my body, which the… Read More My Funny Port-a-cath