What’s Changed in Five Years with Metastatic Breast Cancer

Warning – a philosophical stream of breast cancer consciousness ahead. And some good news – after three years of applications I made it to the Living Beyond Breast Cancer’s Hear My Voice program and I’ll train in April to evoke the role of Patient Advocate. Some things do change for the better. ​… Read More What’s Changed in Five Years with Metastatic Breast Cancer

Diagnosis Fallout: the week after first learning I had stage IV breast cancer

On the eve of Breast Cancer Month, which I shall only acknowledge with true stories of the struggles of stage IV cancer “metavivors” I will kick off with a letter to a team of oncologists at Valley Med in San Jose California nearly five years ago. I reached out to their group out of sheer… Read More Diagnosis Fallout: the week after first learning I had stage IV breast cancer

Periocentesis No. 9

By Saturday morning the removal of another 6.5 liters of fluid drain from me like a waterbed by one of three periocentesis experts, whom I’d met just a year prior right on the same date who came in to poke a hole in my right lower abdomen and guided by an ultrasound and his body of knowledge he said, I swear, “let’s drain you dry.” And drain I did to 15 lbs of relief.… Read More Periocentesis No. 9

Portal to Breast Cancer Resources Including Financial Assistance

http://advocates4breastcancer.org This awesome web portal got on my radar in a private “closed” Facebook group for caregivers of and people with metastatic breast cancer. You’ll find everything from links to groups with emotional support resources to the tangible sorts like copay assistance. It’s a bit design challenged, but don’t let the “crayon” drawings fool you… Read More Portal to Breast Cancer Resources Including Financial Assistance