About me & not me.

Who am I? Not too sure at this very moment, however:

My life prior to my diagnosis with HR+ breast cancer with bone metastasis became the first steps in a long and difficult life’s journey. My education stressed communications and probably defines one of the strongest arrows from the quiver on my back that’s helped me become a good cancer patient. My ability to digest information and discuss it in clear terms has helped me to navigate all the cancer mazes and maps that include financial, medical, professional, and personal. Ask me any question you want about my experience or anything related to MBC and I am happy to share an opinion or an experience. It’s incumbent on me and on anyone able to do so: to share of themselves when and if possible.  No one understands quite like others afflicted with similar diagnoses. And our support circles must widen to include those who may be strangers, today. Fast friends become integral to our own inner peace and how we seek out and integrate them into our lives, I would argue, is key to a better quality of life. Thus my blog that you tumbled into somehow.

How did I get here?
25 odd years of strategy in the high tech industry allowed me to quickly develop required skills to which I’d not even been exposed prior to landing my first gig as a public relations manager. The very nature of what my industry set out to do, simply stated, was to change the speed at which the world communicated. That necessitated the use of newly invented tools – tools that would vividly engage customers in real time discussions rather than just yell it at them way back when in the age of commercial advertising. We had the awesome job of convincing businesses they could trust us to successfully lead them into the future. Hence, the unlikely career of an English major began in telecommunications.

Ha! Bullshit ’til you get it.

Now in a brand new industry position again, I’m in the peak of my Midlife and instead of the executive’s washroom key handed to me I got a fast port for chemo and other substances to be easily injected into my body 😃- it was installed under my skin just over the offending tit that’s got the tumors.

Stupid tit.

So what’s life like these days?

Lonely, isolated, boring at times, funny, abstinent for periods of time I still cannot even fathom, constipated, painful, sweaty, but HAPPY TO BE ALIVE EVERY DAY.

A month of my life on the reality show “Living with the Mets,” looks like this:
6-8 business days a month dedicated to doctors visits, tests, chemo and drug therapy.
An equivalent number of days spent recovering emotionally and physically from the aforementioned 6-8 days.
10-14 days working on the stores – online and bricks and mortar.
My husband and I spend a lot of time in the same room trying desperately to reinvent our relationship to get as much guilt out of the house and as much joy into the house as possible. It’s harder than you might think.
I use some of my leftover energy to write or read and absorb as much media as possible on cancer so I can regurgitate in some informed manner and help those who aren’t strong enough to speak or are too tired to absorb the information required to be as good of a self advocate as we need to be with MBC.
Crafts and artistry – these days I focus on making jewelry, painted furniture and collage.

What I want to do soon or in the best possible time frame as I can?
My life has been dedicated to taking to making something from nothing to solve problems. Now I can do it for people who really need me rather than companies that use me for financial gain. To that end
I have a vision of a true Cancer Survivorship Retreat for MBC and MOC patients and their care givers – providing a fun, safe, spiritual, and restful – fully funded – group setting for 5-7 days within driving distances of major metropolitan areas of the US. I would love to hear ideas from others who want the same thing and find a way to get this going.

It is my goal to learn to use a sewing machine in the next 6-8 months. I intend to recreate the doctors office gown.

Spend more time out and star gazing and astronomy nights looking up with my husband – buy a tin can airstream and attach it to a truck and then the three of us (our Simon cat plus us is three) and go wherever that thing can go for as long as I can go.

Help create ‘cards against cancer’ game with the Cards against Humanity people. Anybody interested in contributing to this one? If we all do a card then I bet it could be done in a matter of weeks!

2 thoughts on “About me & not me.

  1. “Hang tough, I’m here for you! ” is what i always said to my wife during her StgII H2Nu treatments…

    It’s been one year, 3 months and 17 DAZE since Her last treatment. 2-6mos checkups down 22 more to meet!

    IT will never be the same…. CrAzY good times

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