“Becoming a Metastatic Breast Cancer Advocate” by Ilene Kaminsky – A #MetsMonday Featured Post

This post appears in my good friend and fellow blogger’s site Nancy’s Point. She has gifted the breast cancer community with many informative and irreverent posts and I thank her for sharing my words and my life from diagnosis to advocacy. I hope you enjoy reading and if you’re one of the two or three people who don’t follow Nancy’s blog, do. You’ll always find something to take away with you. And her books are awesome… available through Amazon.com or by clicking on the link to my favorite: Cancer Was Not a Gift and It Didn’t Make Me a Better Person

It’s with pleasure I share the next #MetsMonday Featured Post. This one is from my online friend and fellow blogger, Ilene. Ilene shares about her …

“Becoming a Metastatic Breast Cancer Advocate” by Ilene Kaminsky – A #MetsMonday Featured Post

6 thoughts on ““Becoming a Metastatic Breast Cancer Advocate” by Ilene Kaminsky – A #MetsMonday Featured Post

  1. Hello. I am on the Board of Directors at Metavivor. Would you be interested in adapting your post on becoming an advocate to put up on the Metavivor blog? I think it would be very helpful to a lot of our readers and you have a gift in expressing yourself.

    1. Hi Barbara- I think we know one another from Twitter. And I’m both pleased and grateful for your recognition of my post. Please by all means let me know how you’d like me to adapt it -my email is iakaminsky@me.com or you can private message me on Twitter @ilenealizah – Susan Rahn is a friend of mine, albeit because of Covid we did not get to meet last year as planned, so a virtual friend, and I’m a supporter of Metavivor and would love to get more involved and filled out the online form for advocating for Metavivor as my tenure for my year with LBBC comes to a soft close – I’ll continue to help mentor new hear my voice advocates as much as needed but I feel strongly about using six years of (unwanted) experience with de novo MBC to help others as much as I can.

      Thank you again for reaching out and I look forward to adapting this post for the Metavivor blog.
      In hope and health,
      Ilene

    2. Barbara – I don’t know if you got my. Response but I’d be honored, please send me a dm on Twitter @ilenealizah or email me at iakaminsky@me.com thank you so much and I hope to become more fully engaged with metavivor in 2021. ❤️

  2. I am in awe of you, Abigail, and your fellow advocates, who so selflessly devote your time and energy to helping others. “Inspiring” doesn’t do justice to your efforts.

    Your story of your diagnosis was painful to read—the medical side worsened by the inhumane care. Infuriating too. Happens far too often.

    May you have many good days/years ahead.

    Best,
    Annie

    1. Thank you Annie. I know we are all trying our best – all of us. Some more outspoken than others, some unable to speak for themselves so we speak the our truth to let others know what the lives of their loved ones might be like. And to help one another by knowing we are not alone- they are not a;one. No one should be alone with MBC but too many women are. Covid created a very ugly situation for so many women who have lost even the smallest amount of companionship due to the isolation they must face – myself included.

      Oh, what a swell idea we had moving up to the Sierra foothills just before Covid sent us into lockdown. How were we to know when we started selling our townhouse in San Jose in august and moving to auburn in September then into our current home (a whole new can of worms for another day) where the rural community has been thrown into a strange spell of loneliness, fear, political clashing and the geographical isolation of life in the country. A girlfriend of mine convinced me to move here promising support and companionship- haven’t seen hide nor hair of her and I made one friend before lockdown who I really have been able to carry on a developing relationship with. Otherwise my husband is “too busy” and my cancer depresses him… if I could wish anything for everyone it would be to have the virus disappear first but if that’s impossible and it is, to have the virtual support network that I rely on to help ease the pain of it all. And it’s all pretty crappy. I just cannot imagine going it completely alone without reaching out for the people who are able to provide the saving grace of their love. We may be virtual, but that’s not even the point, since there’s friends I’ve not seen in 10, 15, 20 years in some cases who haven’t even raised a hand to say hello.

      I don’t think we can do enough quite honestly.

      If my LBBC advocacy year had been different I’d have been able to do much more. It’s frustrating; the organization has its shortcomings and it’s highlights as they all do. But no one knew how to handle Covid, novel virus to say the least.

      Thank you again. Your continual, consistent support means more than I can possibly say. I wish I could hug you and tell you in person. But thus method will have to do, for now anyway.
      ❤️❤️❤️❤️Much love,
      Ilene

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